Genetic Discrimination Observatory

Genetic Discrimination ObservatoryFile:Gdo logo.png

Founded| June 2018 (2018-06)
Type| Non-governmental organization
Headquarters| Centre of Genomics and Policy, McGill University
in Montreal , Quebec, Canada
Fields| Genetic discrimination, Empirical research, Policy guidance, Public engagement, Provision of information and tools

Key people

| Yann Joly (Lead investigator)
Website| gdo.global/en

The Genetic Discrimination Observatory (GDO) is a Montreal -based international network of researchers and other stakeholders who support the research and prevention of genetic discrimination (GD)—discrimination based on genetics or other predictive health information.[1][2][3][4] Their headquarters are currently located at the Centre of Genomics and Policy at McGill University in Montreal.

## Contents

* 1 Staff and funding
* 2 Projects
* 2.1 Forum québécois sur la discrimination génétique
* 2.2 World views
* 2.3 Case reporting
* 3 See also
* 4 References
* 5 Genetic Discrimination Observatory - Review

## Staff and funding

The GDO staff comes from various fields such as genetics, ethics, law, sociology, and public policy.[5][6][7] The GDO received initial funding from Genome Canada (Génome Québec in French), the Fonds de recherche du Québec – Santé, and the Network of Applied Medical Genetics (RMGA).[8]

## Projects

### Forum québécois sur la discrimination génétique

In 2018, the GDO initiated its first project, the “Forum québécois sur la discrimination génétique” (Quebec forum on genetic discrimination) in Quebec.[9][10][11]

### World views

The GDO provides information about different countries and areas using interactive world views that show studies related to genetic discrimination and other categories in a live map format on the GDO's website.[12][13][14] It is planned to cover nineteen different jurisdictions.[2]

### Case reporting

The GDO provides individuals from Canada and the United States the opportunity to report specific cases of genetic discrimination or health-based discrimination confidentially.[15][2]

## See also

* Genetic discrimination

## References

1. ↑ Billings, P.R.; Kohn, M.A.; de Cuevas, M; Beckwith, J; Alper, J.S.; Natowicz, M.R. (1992). "Discrimination as a consequence of genetic testing". Am J Hum. Genet. 50 (3): 476–482. PMID 1539589.
2. ↑ 2.0 2.1 2.2 Joly, Yann; Dalpe, Gratien; Dupras, Charles; Beviere-Boyer, Benedicte; De Paor, Aisling; Dove, Edward S.; Granados Moreno, Palmira; Ho, Calvin W.L. et al. (23 March 2020). "Establishing the International Genetic Discrimination Observatory". Nature Genetics 52 (5): 466–468. doi:10.1038/s41588-020-0606-5. PMID 32203466.
3. ↑ McGill Reporter staff (April 1, 2020). "Yann Joly on the fight against genetic discrimination". McGill Reporter. https://reporter.mcgill.ca/yann-joly-on-the-fight-against-genetic-discrimination/. Retrieved April 29, 2020.
4. ↑ Staff reporter (March 24, 2020). "Researchers Establish Genetic Discrimination Observatory". Genome Web. https://www.genomeweb.com/policy-legislation/researchers-establish-genetic-discrimination-observatory#.XqhJc9NKj-Y. Retrieved April 29, 2020.
5. ↑ Staff reporter (March 24, 2020). "Researchers Establish Genetic Discrimination Observatory". Genome Web. https://www.genomeweb.com/policy-legislation/researchers-establish-genetic-discrimination-observatory#.XqhJc9NKj-Y. Retrieved April 29, 2020.
6. ↑ Campusa (April 3, 2020). "Pilar Nicolás participa en el Observatorio Internacional contra la Discriminación Genética". Campusa. https://www.ehu.eus/es/-/pilar-nicolasek-esku-hartzen-du-diskriminazio-genetikoaren-aurkako-nazioarteko-behatokian. Retrieved 14 May 2020.
7. ↑ RWTCH Aachen University. "Veröffentlichungen zu genetischer Diskriminierung und zur Akzeptanz von Datennutzung in der Medizin". https://www.rwth-aachen.de/go/id/hakfw?#aaaaaaaaaahakiq. Retrieved 14 May 2020.
8. ↑ "Researchers Establish Genetic Discrimination Observatory" (in en-us). https://www.genomeweb.com/policy-legislation/researchers-establish-genetic-discrimination-observatory.
9. ↑ Buzzetti, Helene (August 10, 2018). "La discrimination génétique, un phénomène répandu ou pas?". Le Devoir. https://www.ledevoir.com/politique/canada/534303/la-discrimination-genetique-un-phenomene-repandu-ou-pas. Retrieved April 29, 2020.
10. ↑ Institut de recherche en santé publique de l'Universite de Montreal. "Le forum quebecois sur la discrimination genetique". https://www.youtube.com/watch?v=cI0XzZT3fo4. Retrieved April 29, 2020.
11. ↑ Observatoire de la discrimination génétique. "Forum". https://gdo.global/fr/forum-liste. Retrieved April 29, 2020.
12. ↑ Genetic Discrimination Observatory. "World view of empirical studies". https://gdo.global/en/gdo-map-life-insurance. Retrieved April 29, 2020.
13. ↑ Genetic Discrimination Observatory. "A geographical overview of approaches adopted around the world". https://gdo.global/en/gdo-map-approaches. Retrieved April 29, 2020.
14. ↑ Genetic Discrimination Observatory. "A geographical overview of U.S. state's laws". https://gdo.global/en/us-states-laws-to-prevent-genetic-discrimination. Retrieved April 29, 2020.
15. ↑ Genetic Discrimination Observatory. "Report a case". https://gdo.global/en/report-a-case-consent. Retrieved April 29, 2020.

## Genetic Discrimination Observatory - Review

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