United Spinal Association

US non-profit organization

United Spinal Association staff and members at the 2019 Roll on Capitol Hill annual disability advocacy event

United Spinal Association is a nonprofit membership, disability rights and veterans service organization in the United States. It was formed in 1946 as Eastern Paralyzed Veterans Association by a group of paralyzed World War II veterans from New York City.[1]

United Spinal Association is recognized by the US Department of Veterans Affairs as a veterans' service organization; as such, United Spinal Association is authorized to prepare, present and prosecute claims for veterans benefits from the local VA regional office level to the Supreme Court. United Spinal Association's veterans service program is entitled VetsFirst.

## History

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In 1948, 70 members of Eastern Paralyzed Veterans Association (EPVA) held a public demonstration in New York’s Grand Central Station to gather signatures supporting the nation’s first accessible housing bill (Public Law 702) to get federal funds to build accessible homes for paralyzed veterans.[2]

In 1968, EPVA advocates for equal access to federally-funded buildings and facilities for wheelchair users and all Americans living with disabilities, leading to the passage of Architectural Barriers Act of 1968.[3]

In 1970, Executive Director James J. Peters set out to expose the deplorable conditions on the spinal cord injury units at the Bronx Veterans Hospital,[4] culminating in a Life magazine expose, the creation of the US Department of Veterans Affairs's dedicated Spinal Cord Injury Service. In addition, the Bronx Veterans Hospital was modernized, and now bears Mr. Peters' name as the James J. Peters VA Medical Center.[5]

In 1987, in conjunction with Paralyzed Veterans of America, United Spinal Association helped found and continues to underwrite spinal cord injury research at the Yale Center for Neuroscience and Regeneration Research. This center remains under direction of Dr. Stephen Waxman.[6]

United Spinal played a role in writing portions of the Americans with Disabilities Act of 1990, the landmark civil rights law that prohibits discrimination based on disability.

Among the group's past and present members are Lex Frieden, Junius Kellogg and Frank Genese.

In 2024, the United Spinal Association partnered with TandemStride and other groups as a part of TandemStride's new peer-to-peer network. This network will provide support to those suffering from traumatic injuries.[7]

## Programs

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United Spinal's Spinal Cord Resource Center offers visitors the opportunity to submit questions to experienced information specialists on any aspect of living with spinal cord injuries or disorders or get information and resources to resolve a situation that impacts health, independence and quality of life.[citation needed]

United Spinal offers members access to local chapter and peer support groups that promote inclusion and independence, organize local events and projects, advocate for rights and accessibility, and offer information and support.[citation needed]

Other services and programs include:

* VetsFirst: advice and advocacy services for veterans
* Accessibility Services
* Advocacy
* Pathways to Employment program
* Tech Access program
* Emergency preparedness/disaster relief

## References

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1. ^ "United Spinal Association - National Organization for Rare Disorders". rarediseases.org. 2022-08-11. Retrieved 2024-07-10.
2. ^ "Adaptive Housing Grants". House Committee on Veterans Affairs. October 31, 2011.
3. ^ "U.S. Access Board - Architectural Barriers Act". www.access-board.gov.
4. ^ "Memorial" (PDF). www.rehab.research.va.gov. Retrieved 2021-04-03.
5. ^ [1]
6. ^ Engers, Rachel. "Navigating the spinal cord". medicine.yale.edu.
7. ^ "United Spinal joins peer network". HME News. April 11, 2024. Retrieved 2024-04-17.

## External links

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* United Spinal Association web site
* Department of Veterans Affairs recognition of United Spinal Association as a veterans' service organization

Authority control databases

International|

* ISNI
* VIAF

National|

* United States